The ADRC longitudinal cohort has followed patients since 1988. The Uniform Data Set (UDS) was implemented in 2005, standardizing much of the clinic’s data collection across all ADRC’s in the nation. Since that time a total of N=623 patients have been assessed at the clinic and 298 of these patients are currently being actively followed. After an initial baseline visit, patients are assessed annually for memory impairment. Figures describing the frequency of patient visits for the cohort are available below. Note that patients with greater than 7 visits were seen at the clinic prior to the implementation of the UDS in 2005 and hence some of the data collection procedures changed at that time. A PDF version of the table and figures are available here: Visit Frequency Report.
Frequency of Visits by Status
Status based on initial visits
Status based on latest visits
A primary goal of the ADRC is to identify and quantify those factors that are associated with the progression of dementia. The ADRC longitudinal cohort has data on multiple patients that have transitioned from normal cognition to mild cognitive impairment and alzheimer’s disease. The number of longitudinal patients who have progressive disease and the rate of disease progression is provided below. A pdf version is available here: Conversion Report.